Take part in the Chronic Spontaneous Urticaria (CSU) Survey: Your Experience Can Make a Difference
- Associazione Arco
- 8 hours ago
- 2 min read
If you are living with Chronic Spontaneous Urticaria (CSU) or care for someone affected by it, your experience is valuable.
The ARCO Association (Association for Research and Care of Urticaria), in collaboration with the Center for Economic and International Studies at the University of Rome “Tor Vergata”, has launched an anonymous survey to collect real, concrete data on how this condition impacts the daily lives of patients.
Why your participation in the CSU survey matters
Chronic Spontaneous Urticaria is not just a skin condition — it can have a significant impact on mental health, work life, social interactions, and everyday expenses.
Unfortunately, there is still no clear picture of how deeply CSU affects people’s lives on an economic and organizational level. Your input will help us:
Measure the indirect costs of CSU (missed work or school days, out-of-pocket expenses, etc.)
Gain a better understanding of patients’ real needs
Advocate for fairer and more effective healthcare policies
Make visible what is often invisible
How to take the CSU survey
The survey is online and completely anonymous.
It takes about 10–15 minutes to complete. It’s open to:
Individuals affected by CSU
Family members or caregivers actively involved in managing CSU
Click here to participate now:
What will the survey ask?
You’ll be asked to share information about:
Your diagnosis and treatment journey
Any barriers or difficulties accessing treatment
The direct and indirect costs associated with CSU
How the condition impacts your work, studies, and daily life
All answers will be handled anonymously and aggregated, with full respect for your privacy.
Your voice matters
Giving a voice to those living with chronic urticaria is essential to promote a more inclusive, informed, and fair healthcare system. Your contribution is an act of responsibility and solidarity—for yourself and for others living with CSU.
Join now: your experience has value
Don’t miss the chance to make your voice heard and support scientific research on Chronic Spontaneous Urticaria.
Complete the survey now by clicking here:
Share this initiative with others you know—every response matters!
